Hi All,
Tom had a pretty good weekend. He is certainly in the right place thanks to everyone who helped (Kim…thanks), and the efforts of Dr. Dudley (neurologist at Los Robles). I can’t thank him enough for his help and have a new appreciation for families navigating through the health care system, now just need to find a cheaper gas station!!
They continue to wean him from the ventilator, still has pneumonia, fever…all to be expected.
Yes, we are seeing small…sometimes imperceptible changes, but the neuro team there are his best cheerleaders. Today he is having a specialized PET scan to look at brain metabolism. No seizure activity noted on his continuous EEG. Every day is different…no more “toe wiggling”…however we really feel he is more and more aware.
Allie is in Chicago this week getting her apartment cleaned out and settled. Then she will drive back to Simi and will stay here with me for the next year or so. I’m so grateful she is able to do that. Grant leaves for Lesotho next Tuesday for a 27 month Peace Corps stint. A very tough decision for him, but he knows Tom would want him to go. Ben is back in Virginia, working at the vineyard…but plans to try to get back sometime this summer. Looking forward to visits from Tom’s brothers and my sister and nephew.
Please keep up with Allie’s blog…she does such a good job of expressing our feelings (link below…again). She will start up again when she gets back next week.
Thanks again for everyone’s support, love, prayer’s and well wishes…please continue to keep Tom in your thoughts.
As George would say…we are now “Bruckeyes”??....(Go Bruins…!).
A shout out to my brother Bill who is also in the hospital….doing better I hear…keep up the good work bro..!...talk to you soon.
Thanks All
Anne
Thanks so much for taking the time and energy to provide all of us with updates!
ReplyDeleteAllie,
ReplyDeleteThanks for all the updates. Everyday as I train for the upcoming triathlon events, I think about your dad. Then, I swim or bike or run faster. Most of the time, I wish I could transfer energy to him. Sometimes I just stop and think about it. In the short time I've known him, he's made an impact on me. I continue to hope and pray that his condition improves.
I wish you well in your move from Chicago and hope to see you soon.
Tom DeMelfi
Allie,
ReplyDeleteHope your move is uneventful and that you're back soon. Please give your Mom our best wishes on her birthday.
Jamie