It's been really nice to have him here, and Toby's been lying by his bed or next to his wheelchair most of the time, just like we knew she would. It's been quite an adjustment; figuring out how to set up and use all the equipment that's been delivered, splitting up his feeding and meds schedules, improvising physical and occupational therapies. Mom and I won't be able to leave the house at the same time anymore, things like that are going to take some getting used to. According to her, it's like having a new baby...a really big one on lots of medications, I guess.
It is good to have him here, and not have to drive an hour to see him. But it's intimidating to know that at this point his progress pretty much depends on how we can advocate for him. We are going to do our best to make sure that he doesn't lose the progress he made while at CareMeridian, although he won't receive physical therapy and occupational therapy at the same frequency or intensity that he got while he was there. It seems crazy to me to send someone home in his condition, and we pushed as long as possible to keep him there, but it is what it is.
And so, moving forward, our goal is to get him to a point where he can go to acute inpatient rehab. In order to be eligible for that, he has to be able to handle at least 3 consecutive hours of physical therapy and consistently follow commands. It might take a few months to get him to that point, but he's definitely on his way.
Now we're looking for a wheel chair accessible minivan, we're looking into getting a tilt table, and I'm sure many other things that we'll discover we need in the next couple months. So far things are working out, and most importantly we can tell that Dad's definitely happy to be home. Hopefully the familiarity of his surroundings will contribute to his progress, on which I will definitely keep you updated!
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