Sunday, June 20, 2010

The real thing!

I got a bit ahead of myself last week, but now I can say Happy Father's Day for real! If ever there was incentive to be a good dad, just think about our situation. One of my favorite things is when the doctors and nurses come into the room, check out the pictures and things we have on the walls and say "He must be a really good dad." Yep, he is.

Well I don't know if he knows it's Father's Day (I told him, but who knows), but he is certainly having a great day! He's been nice and calm all morning, opening his eyes from time to time, moving a little. We're having less of the spasms (posturing) and sweating than the past couple of days which is a nice break. No fever to speak of today, but had a low grade fever last night. The doctors that came in this morning said they now think it is a central cause because he is currently infection free. His lungs are also sounding a lot clearer and he's not coughing out secretions as much. They also said his is definitely stable enough at this point to be moved to the new facility in Oxnard. So off we go tomorrow! There we'll begin trying to get him off the trach and start physical therapy. His hands are going to be a particular challenge because of contractures that are setting in. His legs are also starting to lose flexibility which is of some concern. Hopefully the sooner therapy starts, the sooner we can start reversing the loss of flexibility and muscle mass. As always, it's going to be a long road.

Nana arrived safely on Wednesday and I think it's been much more comforting for her to be able to see him. It's also been nice for him to have her familiar voice, "Tommy! Tommy look at me!" It's cute. As my mom and I have starting getting used to, she's adjusting to the "two steps forward, one step back" progression of his recovery. Her patience is pretty phenomenal.

Ok well we're getting ready to sit Dad up in the cardiac chair, nice little Father's Day treat! Happy Father's Day to all you dads out there!

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